We know that the diagnosis of a food allergy or GI condition can sometimes be overwhelming for families. Fortunately, there are many great support groups out there that can help you find your footing with resources, advice and stories from other families going through similar situations. Here are a few that we have found helpful.
American Partnership for Eosinophilic Disorders (APFED)
APFED is an advocacy group for children and adults living with eosinophilic esophagitis, eosinophilic gastroenteritis, eosinophilic colitis, hypereosinophilic syndrome, and other eosinophilic disorders. It is a great resource and provides accurate, up-to-date information on eosinophilic disorders and related problems. Not only does the organization increase awareness and educate patients and physicians, APFED also works to increase funding for research.
Food Allergy Research & Education (FARE)
FARE was established in 1991 to share information vital to raising a child with food allergies. Throughout the year the group holds events to raise awareness about food allergies, including Food Allergy Walks in cities across the country. Their website features an extensive database of allergy-friendly recipes, as well as links to other resources like local support groups and allergy camps.
Kids with Food Allergies (KFA)
Started by Lynda Mitchell, KFA is a nationwide nonprofit organization that offers online food allergy support groups, information, news, and allergen-free recipes for families raising children with food allergies.
Reflux Rebels was started by a group of mothers who all had children with reflux and food allergies. Their goal is to share the knowledge they have learned from their own experiences and provide advice to families going through something similar. The Web site features some helpful quizzes that can help you get an idea of what your baby’s symptoms mean and what treatment options are out there.
Founded by Gina Clowes, AllergyMoms provides support for parents of children with food allergies. The Web site and monthly newsletter features articles, food allergy recipes and the latest news and research on breast-feeding, hypoallergenic formulas, eczema, reflux, anaphylaxis and school policy.
We hope you find these groups helpful! There are also a number of local support and advocacy groups out there that are ready to lend a hand too. What groups have been good resources for you?
-Sarah
