03/12/2015
...Hillary Savoie, PhD is the Chief Communications Maman at the Feeding Tube Awareness Foundation (FTAF). She is also the founder and director of The Cute Syndrome Foundation (TCSF). Her daughter Esmé, who has two rare genetic disorders, PCDH19 Epilepsy and SCN8A, is four years old and the inspiration for her work with FTAF and TCSF. This post has been adapted from a post on The Cute Syndrome , Hillary’s blog about life with her...